Planet of the Blind

Things Will Never Be the Same.

Roscoe

May 22, 1994 - July 19, 2008

 

 

Farewell, George Carlin

Getting the “last laugh” is easy, 
It’s the audience you gotta watch out for.

George didn’t say that — I did, but heck, any joke in a storm? 

We love ya pal.  We’ll never forget the first comedian to take his case all the way to the Supreme Court.

Rest in Peace.

S.K.

Civil Rights for People with Disabilities vs. “The Usual Suspects”

Right now, even as we drink our coffee there are powerful forces working overtime on Capitol Hill. I like to call these forces “the usual suspects” because I love the old TV series “Dragnet” and also because it takes too long to type all the acronyms of the various business and human resources lobbying groups that have assembled to fight the “ADA Restoration Act”. Oh yes, and there are prominent corporations opposed to the full inclusion of people with disabilities in the workforce.

The Usual Suspects are opposed to the legislation because it would require that employers actually make reasonable accommodations for employees who have disabilities—rather than allowing said Usual Suspects to proclaim that these accommodations are wildly unreasonable. Why, By Golly! even reassigning a disabled employee to a different but equal job is an undue burden on said Usual Suspect. Enter the extraordinary, well funded, hence powerful Allied Usual Suspects who are working like junior attorneys to “mark up” the bill.

Their aim? To do to the “ADA Restoration Act” what the Supreme Court has done to the original ADA of 1990.  In decision after decision the Supreme Court has exonerated employers from having to make workplace accommodations for disabled employees. The court has used a cynical  loophole when deciding “for” employers against disabled workers: they’ve argued that Congress, in adopting the ADA has assumed the power to regulate commerce within the respective U.S. states—in effect the conservative majority on the court has asserted that Congress doesn’t have the authority to legislate civil rights for people with disabilities—and by extension, for any other group.   

What’s the final final rationale for such a position? Why by God if you give one disabled employee an accommodation well then, by God you’ll have to give all the differently abled people accommodations and heck, that would mean living up to occupational safety and human rights standards and that’s an undue burden on capitalism which, it turns out, doesn’t always see the opportunities for new markets.

So what you do is declare the authority of Congress null and void. You do it by the process of red herring-ism, you confuse the public that the issue is about disabled people in the workplace who are always a suspect group in the view of the general public—aren’t these people faking something? Trying to get an advantage with a better parking space?

If Americans don’t demand of their Congress true accountability on behalf of our nation’s disabled citizens then they are in effect giving away the last measure of our civil rights—the stakes in this argument are really that important.

Write to your Congressman or Congresswoman; take a stand. Don’t let the “usual suspects” continue to evade social responsibility by means of obfuscation.

S.K.

LINKS:

"Permanent Link to ADA Restoration Act Blogging Round-Up, Feb 11-28 ‘08"

Harriet McBryde Johnson: She will be deeply missed.

Last night over dinner with friends I learned that Harriet McBryde Johnson has passed away.

My first thought was: “How can we tell our sorrow from our bread?”

We had been talking around the table about untimely death. Not so long ago my friend Deborah Tall died young from breast cancer. She was just hitting her stride as a poet and editor. Her memoir “A Family of Strangers” (which was Published just weeks before her death) is a stunning accomplishment.

Now Harriet has died at 50.

America has lost a disability rights leader and a pioneering voice for dignity and justice.

I don’t want to write obituary prose. I can’t bring myself to do it.

Harriet McBryde Johnson’s wonderful memoir “Too Late to Die Young” should be on America’s summer reading list.

She had the unshakable determination to stand up for the rights of the disabled and she took on public figures who would demean or discount the lives of people whose disabilities scare the pants off of shallow “normates”.

When Jerry Lewis opined in a 1990 “Parade Magazine” piece that in his view being disabled must be like being half a person—Harriet McBryde Johnson took him on.

When Peter Singer opined that certain lives are not worth living she took him on.

She took people on in court as an able attorney.

She took on the Democratic party when it couldn’t see why Terry Schiavo’s story was more than just one family’s tragedy.

She fought for the dignity of human life and fought those forces that would diminish our human experience with sophistry and outworn symbolism.

She will be deeply missed.

Let us carry her flag.

S.K.

LINKS:

Yesterday, from Kay Olson's The Gimp Parade, where you will also find numerous links to her writings:

Overwhelmingly sad news today: Harriet McBryde Johnson has died at age 50.

Image description: The photo shows Johnson in a flowered-print navy dress looking toward the camera. She sits in her wheelchair, though the image is a close-up focusing on her and not the chair. Johnson leans forward, right elbow on knee, chin in right hand. She's a middle-aged white woman with dark hair in a very long braid trailing over her shoulder and into her lap. She's not quite smiling, but looking interestedly back at you.

The Post and Courier of Charleston, SC, provides a preliminary notice, with a more formal obituary expected soon

Also:

Beth Haller from Media dis&dat,
at a loss for words,
Sad News,
RIP, Harriet McBryde Johnson

On Being Alex Barton

Mrs. Marcia Cully
Morningside Elementary School Principal

Dear Mrs. Cully

My name is Stephen Kuusisto and I am blind. I was born blind in the mid 1950’s—an era when kids with disabilities were not encouraged to attend public schools. Because my mother was tough minded and persistent I went to the Oyster River elementary school in Durham, New Hampshire instead of the Perkins School for the Blind. Nowadays I make my living as a professor at the University of Iowa where I teach graduate and undergraduate courses in creative writing.   

When I heard the story of young Alex Barton who was “voted off the island” known as Kindergarten because he has behavioral problems associated with an autism spectrum learning disability, and that accordingly his teacher and classmates were simply annoyed by his presence, well, aside from my natural incredulity that such a thing can still happen in the United States, I felt a flood of long repressed tears. You see, I was once a kid like Alex Barton.

I still carry deep under my skin the barbs and taunts of mean spirited public school classmates who found ways to bully me simply because of my disability. I wrote a best selling book about my childhood experiences called “Planet of the Blind”. That book has now been translated into 10 languages. I also host a blog called “Planet of the Blind” where I advocate almost daily for the rights of people with disabilities.

Like many “baby boomers” with disabilities who helped to pioneer the concept of mainstreaming for disabled kids I keep hoping that the vicious and ignorant behavior that I experienced in public schools will at last become a thing of the past.

So you can imagine my deep distress upon hearing the story of young Alex Barton and his teacher Wendy Portillo. I won’t belabor the point. I’m certain that your school district and school board has been hearing a good deal about this affair.

I simply write in this instance to say that unlike the media or those who would take sides on this shameful matter, I am grieving for Alex and his family. The history of disability features a long timeline of stigmatization and I know personally how hard it is to overcome the effects of ridicule and substandard teaching.

I wish you and your community good luck and good sense. I hope it’s not too much to ask that your school district will now take this opportunity to think hard about disability with a renewed sense that kids with disabilities are real citizens too. 

As a final disclosure: I am posting this letter on my blog with the hope that I might hear from you in some affirming way. I’m sure we can agree that there are real lives in the balance. 

Sincerely,

Professor Stephen Kuusisto
The University of Iowa

Holy Cow - would ya look at all these LINKS!

Disability and Language: a NY Times Article Review

This comment was left on a post by William Peace on his blog, Bad Cripple.   Therextras wrote " Thank you for an excellent expose of a typical media dissemination of language and attitudes we would like not only to reform but squelch. I hope you sent some response directly to the newspaper." 

Team [with]tv would like to second that remark.

Here is an excerpt from William's post. 

Monday, May 12, 2008

Disability and Language

Yesterday a long article appeared in the New York Times entitled "Taking a Chance on a Second Child". The article was written by Michael Winerip, a Pulitzer Prize wining writer. Mr. Winerip is a seasoned reporter, graduate of Harvard University and a gifted writer. Yet a day later I remain stunned and outraged by the language Winerip used. The article in question is about Jordana Holovach, her son Jacob who is severely disabled, and her decision to have a second "healthy" child.

The tone of Winerip's article is shocking. Each and every mention of disability is overwhelmingly negative. The language is antiquated, insulting, and devalues the life of a child and by extension all disabled children and adults. Among the snippets I found particularly appalling include the following:

In referring to Ms. Holovach's son: "And as much as she loves that boy and as hard as she's worked to make him whole...she felt snake bit"

Ms. Holovach's son is "confined to a wheelchair".

Ms. Holovach's son was responsible for her divorce: "Her first marriage ended in divorce under the strain" and "Jacob was a big reason".

Before Ms. Holovach's son was born "they were successful people" (note tense).

Oh don't stop here.  Keep reading, there is more....

Then stop by Patricia E Bauer's blog for this additional link.

Cross-posted on Blog [with]tv

Top Ten Reasons Why the Blind Can't Get Ahead

10. The public still thinks blindness is a great misfortune.

9. Vocational and orientation-mobility training are horrifically funded—that is, its left up to the states and nonprofit organizations when it should be offered by every eye clinic and billable to Medicare.

8. Blindness advocacy organizations fight amongst themselves like the characters in “Gulliver’s Travels” who start a civil war over the question of which end of the hard boiled egg to break first—the big or small one.

7. Just try using a cell phone or a Macintosh pc. I mean “off the shelf” “ready to go”—just try it.

6. Just try using a PC “off the shelf” without expensive “third party software”—just try.

5. Just try going to a movie and asking for audio description.

4. TV can’t be watched—probably a good thing.

3. Bank machines; vending machines; signage; endless roulette of incomprehensions…

2. Blind students drop out of college at higher rates than other disabled student groups. See above problems.

1. Access to printed or electronic information remains highly provisional. Thank you Google; Microsoft; Apple; Adobe; Mozilla; Sun Micro Systems; and all the rest of you bongo whacking Information Technology designers who continue to think of the blind as “add on” people. In Disability Studies we call this principle “the defective people industry”.

Why am I posting such a riposte on Memorial Day?  Ask the Blinded Veterans of America.

S.K.

Iowa blind advocates (Steve being one of them) disagree over court ruling on paper money

Advocates Disagree...(click for complete article)

Updated May 20. 2008 6:04PM
By Diane Heldt
The Gazette
diane.heldt@gazettecommunications.com    

A federal appeals court ruling Tuesday that paper money — indistinguishable by touch — is discriminatory to blind people was hailed by some advocates as a long-awaited step forward, while others said a change is unnecessary and plays into negative stereotypes about the blind.

Blind people have adapted and often fold money to distinguish the bills, but no longer would have to rely on others to help them if the Treasury Department makes bills of different sizes or prints them with raised markings, supporters of a change said.

"What's at issue here is the ability to identify money without other people helping you," University of Iowa English Professor Steve Kuusisto, who is blind, said. "My view is, the most accommodations possible help the most people. To be opposed to accommodations that help people is narrow."

The American Council of the Blind sued for such changes, but the government has been fighting the case for about six years. The U.S. Court of Appeals for the District of Columbia ruling could force the Treasury Department to alter money, though the ruling is subject to appeal.

Flying Boogers

In his column the "Middle Seat" for The Wall Street Journal, Scott McCartney writes about the state of the airline industry and what that means for all of us as we rely on this mode of transportation for business and for pleasure.  Let me rephrase that.  We rely on the airline industry to take us to places for business and/or pleasure.

Today I happened to catch Fresh Air on NPR as McCartney explained in disgusting detail why to avoid the middle seat on an airplane and were I near a phone I would have called in to state my case as to "why to avoid any and all seats..."  I was unable to make such a call but that won't stop me from sharing my latest experience with all of you should you decide to continue reading this post.  Consider that a warning...

Why We Need TV and Movies That Include People with Disabilities: Part 104

So there I was today on NPR’s “On Point” program with two terrific blind professionals and I was feeling like the school kid who has to use the bathroom and can’t wait any longer to announce the matter. I needed to say that the reason blind people are so woefully unemployed and the reason that the public marvels at the accomplishments of exemplary blind professionals like Gordon Gund or David A. Paterson is that the film and TV industries continue to make blindness look horrible.  Who wouldn’t imagine, after seeing that dreadful movie “At First Sight” (with Val Kilmer and Mira Sorvino) that being blind isn’t  a minimal life? That movie came out at the same time as my memoir “Planet of the Blind” and it reinforced every cliché about blindness that I was trying to conquer. If the human resources professionals saw a prime time television show in which a blind person confidently uses state of the art assistive technology—heck, even showing the non-disabled characters a thing or two about the gizmos, well that would be as big a step toward changing the climate of unemployment for the blind as our well intentioned celebration of Governor Paterson’s oath of office. Let’s face it: the public thinks that blind people are scarcely able to navigate their living rooms. How could they possibly serve as good employees? That Ph.D. or Master’s degree must be some kind of a trick. That’s it! The “brainiac” blind woman or man is probably “faking it” just like those guys you see  begging for money with the phony sunglasses. Yep! That’s gotta be it! How do I know this at (insert company name here)? Because I just saw Disney’s film version of Mr. Magoo. Now there’s a blind guy for you! Ha! I laughed til  I dropped my popcorn on my plaid shorts. Boy Oh Boy  was that ever a good movie!

In case anybody’s wondering, I was once interviewed by a producer of ABC’s television program “20/20”about the possibility of an interview associated with the publication of “Planet of the Blind”. What did I do to ruin the deal? I mentioned that ABC is owned by Disney and that the new film of Mr. Magoo was a disgrace. They were very nice as they showed me to the door.

S.K.   

Professor Stephen Kuusisto
Department of English
The University of Iowa
308 EPB
Iowa City, IA 52242

Links:

Remembering Mr. Magoo

Cross-posted on Blog [with]tv